On this page you will find links to some OBOH documents that we have put together for the benefit of our membership as well as links to other helpful websites in the PCD and Rare Disease community.  We are constantly looking to post the most up to date information available, so if you have suggestions on items we can share to the PCD and Rare Disease community, let us know at!

OBOH Resources

Below are the slides and script that were presented during our kickoff event in November.  The script can be read along with the slides, or the slides can be viewed on their own, the script just provides some additional information on each slide.

OBOH Benefit Presentation

OBOH Presentation Script


External Links

The PCD Foundation

NORD – National Organization for Rare Diseases

Rare Disease Foundation