Rare Disease Day 2017
Rare Disease Day 2017!
Today marks the 10th International Rare Disease Day! We at OBOH had a great morning at the Connecticut Legislative Office Building in Hartford attending a panel of speakers that included doctors, researchers, parents, community organizers and patients within the local rare disease community. There were also many state legislatures who expressed their continued solidarity with us and some discussed the bills that are currently being brought forth to aid our efforts. We were so happy to be able to have been a part of this day and to see how strong of a presence the rare disease community has in our state. OBOH is looking forward to partner more with the groups we met, especially NORD and RAN who hosted the event today. Thank you all for your support, we are making a difference!